Sunday, October 28, 2007

We have all gone through this.


This is just what we have gone through.
But the main thing here is to ask questions and look at alternatitives. The best may not be surgery, so you will haev to ask to find out.



Episode 4-”The Plan”
That’s five days from now. She would be admitted to the emergency room at the hospital now and held in the intensive care unit for one day to evaluate her condition and to treat her headaches. I hate to admit this, but one of my first fears had to do with wether our health care coverage would be ready for the hospital bills that I pictured were already in to six digits and climbing on the first 5 minute phone call. Then, I chastised myself and started thinking about all that advice I had heard about a second opinion. Maybe they had it wrong. Those lime disease bugs started sounding better all the time. As things settled down in my head, a list of questions finlly started to form:

1. How certain was the MRI?

2.Was it also read by another physician?

3. Yes, the pathologist has already reviewed it and had a consultation on the diagnosis. Three doctors agreed on the brain tumor diagnosis. That made it very unlikely that it could be anything else.

4. What alternatives were there to brain surgery?

5. Where should we have the work done?

14 comments:

Anonymous said...

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Mamamull said...

Thanks for beinig strong enough to help others learn about brain cancer. We have a friend whose honeymoon was cut short by his new bride's headaches. They have been living the nightmare of multiforme glioblastoma for about three years. A long time, compared to some.

Thanks for reminding us to do more to help them.

Jenn Jilks said...

How I wish had come upon this blog a year ago! My father's doctor didn't tell us about his symptoms. Thank you for sharing your information.

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EMR said...

I think the situation will be well explained by the Doctor/Surgeon to the patient about the chances that could better him with the surgery and the risk factors.The decision ultimately lies in the hand of the patient.

Ethan said...

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Anonymous said...

http://getthroughittogether.weebly.com/
This website has a lot of information on brain tumors and how to go through the journey with one.

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Consequences of intracranial hypertension: The symptoms that often occur first are those that are the consequences of increased intracranial pressure: Large tumors or tumors with extensive perifocal swelling (edema) inevitably lead to elevated intracranial pressure (intracranial hypertension), which translates clinically into headaches, vomiting (sometimes without nausea), altered state of consciousness (somnolence, coma), dilation of the pupil on the side of the lesion (anisocoria), papilledema (prominent optic disc at the funduscopic eye examination). However, even small tumors obstructing the passage of cerebrospinal fluid (CSF) may cause early signs of increased intracranial pressure. Increased intracranial pressure may result in herniation (i.e. displacement) of certain parts of the brain, such as the cerebellar tonsils or the temporal uncus, resulting in lethal brainstem compression. In very young children, elevated intracranial pressure may cause an increase in the diameter of the skull and bulging of the fontanelles.
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